Where is our leadership???

[MailMe01]

Hi all:
I just posted an update to my own story, but while browsing the board, was just amazed on how silent this board is. Why are we not the best source of information available on the internet? We SHOULD be!! I realize not everyone's story is identical, but people are coming here for support and to get questions answered and I see very little here, not even links to other reputable sources for info. And even more upsetting is that in the year & 1/2 since my first post, it has not improved and that is shameful. Why the "silent treatment"??
Here's one fast suggestion: please put a button on the forum page that a person can click to go directly to the board to begin reading. Perhaps a casual seeker thinks you must first register to even read the board, and most perhaps don't take even that first step. I had browsed other sites (linked from a simple websearch) and came across some nasty sites with lots of inaccurate info, nasty language and name-calling, and other 'psycho-drama' that told me those were not the forums for me. I found this one and thought , "Finally!". But I have been mostly disappointed in us so far..........

[sadlisa]

I agree it would be nice to have more action. It seems that it takes time for things to get going. I got a bit disappointed and stopped checking for a while. To my surprise when I checked a few more posts had been started. I am open to ideas on how to get this forum more active. I would like to know more about what is happening to people post meningitis. I know my health has changed. I feel like the root cause of my symptoms/after effects is causing other problems. It would be nice if anyone knows of any doctor with an interest.

Thia

[dmat01]

I would like to see this forum become active. I think one of the reasons which prevents it from being more utilized is people are looking for a more personnel interaction during a time in which they have very little time. At the onset of this illness, the loved ones are in a whirlwind of sagging hope and little knowledge while facing awesome hardships and severe changes in thier lives. As the caregiver, an appointed gaurdian of my husband, I was seeking to find a forum where there was the possiblity of live chat interaction with others whom live the same type of cirumstances I do each day, or whom have done so, and possible some whom have reached that level of daily living that I still have hope to reach.
Otherwise, A support group forum which is interaction with others in a live chat on a scheduled basis would make this site really pop.

Another reason I think prevents this site from being utlized is the lack of people whom have researched to see what was available. I know, from experience, it is not easy to find others whom walk in similar or like shoes that the family of those whom have suffered with this disease. It is not your typical next door neighbor type thing to go through. SO, therefore people possibly don't realize or have researched to find this opportunity as I did. To be truthful, I did the research to find something of the sort, because my sister is involved in a live chat group for wifes of former service men with PTSD.

As for leadership, I applaud anything in which the leadeship does. From experience with facillation of start up of a support group it is very difficult to get something up and running from the ground up and keeping it going. I know that it is a learn as you go experience, and it may appear as if nothing is happening or anyone is responding for long periods of time. Please , I need this support and need to give support.Do not get discourage. Things can't stay the same forver and I believe this site has a very important spot for many lives in the future. we just need to help the leadership get the word out about this site if we want this to work.