I was fine for a few months but now I am beginning to show some of the same symptoms many of you have written about. My main concern is my short term memory loss. And the inability to process new information in my brain. And if I exert myself to much (work) my physical pain symptoms worsen for the rest of the day. But when I wake up the next morning all is well and I start out with a clean slate. Again, if I do to much on this new day, I begin to feel the pain, usually by mid afternoon and for the rest of the day/evening/night, sometimes so severely I can barely function. The next morning, all is well again and I start all over again. I am slowly learning to pace myself and recognize the symptoms before I relapse.
Headaches are not severe. I've had cluster headaches, migraines and vascular headaches many years ago and by comparison, what I am experiencing now is nothing compared to what I've had in the past. But the strange thing about these headaches is that they turn on and off like a light switch. I recently went to see my doctor and she said that is because the brain is feeling pressure from the swelling. I asked, "you mean my brain is still swelling?" and she said yes. That kind of blew me away.
So from what I've read here and elsewhere this is my new life. I consider myself fortunate that my symptoms are not as severe as many of yours. I have no seizures or migraines or reoccurring infections, but it's only been 3 1/2 months since I was diagnosed. And winter is coming. But I am retired so I don't have to worry about holding down a regular job. Quite honestly, I couldn't the way my pain flares up with to much work. I can comfortably work about 4 hours a day and then I have to quit. And I lay down sometimes in the morning and/or afternoon for a quick rest and tiny nap which I never used to have to do.
I will take it one day at a time and I will not worry what tomorrow will bring. What happens will happen regardless of my meddlesome emotions getting in the way.
