I wonder about the aftereffects also with my husband. I know that I recognize one thing- the aftereffects( Symptoms) are real. We have explored the spinal fluid leakage also. So far, they say that is not an issue for him. But, whenever anything occurs like a seizure, headache, earache, name it, whatever- then he seem to lose any ground he has gained. His cognitive skills take a nose dive, his hearing worsens( if that is even possible). He becomes more mechanical in his talk and motions after any issue. Where I can get a cold and manage through it- He does not. Unfortunately, many times what is an issue for him, seems very trival to others.( they just don't understand ) You know, we take for granted so many times how uneventful most experiences are until someone we love gets something like meningitis. I honestly take nothing for granted anymore. I wonder each time we experience any event ( little or big by our calculations) what the overall event is going to be on him.
As for hearing, He was literally almost completely deaf when coming out of the comotose state. According to the doctors, he does not hear any better, and he has three different issues concerning his hearing. But he has learned to compensate the loss with speech therapy concerning the central nervous system, lip reading, and some really outdated hearing aids he had prior to the meningitis. We have been advised to go for the cochlear implants and advised that it was too much of a risk because of the meningtis. A few Doctors say they do it all the time, and other Doctors say that they would never consider it. I say this, I am still seeking more professional input concerning our issue on hearing because to be quick frank about it- everyone has a different opinoin and there is no real data to completely validate the opposite varying viewpoints. I usually say nothing ventured nothing gained- but after meningitis has entered our lives, I am not sure I believe that anymore.
I want to encourage you in your journey. I answered this post because encouragement from those whom have walked this path are not so readily available for this disease. Yes, people do get this disease, live with it, and suffer through a lot of it, but it's not your neighbor, relative, or immediate friends whom have any experience with it. If I was not able to help you any other way, at least I hope that this contact encourages you that others are walking in the shoes of aftermaths of meningitis,there are others which understand what it is like from the inside, and you are not alone in your search of knowledge and resources for the decisions concerning this disease.