Hi Dmat01, thank you for responding to my post. I will look at caringbridge and your husband's story. I have questions for you, but I'm not sure if they're answered there and would just be repetitive. My primary question is when was it that he contracted meningitis? From what I have read about any form of bacterial meningitis, the severity of progression is a big factor in recovery. With me, I didn't have seizures, I wasn't in a coma (although I barely remember the day I had the spinal and being admitted) and I did not require being put on a respirator when they finally decided to be more aggressive with medical treatment. Mine was missed or misdiagnosed for 4 days, so I believe I have a very tired guardian angle or a team of angles that were with me during that time. In fact, I released from the hospital not knowing I had it. I was released on a Thursday and was informed the following Monday that the cultures came back positive for H. flu meningitis. That is not at all common in adults. It usually affects young children and is the one that they give the HIB vaccine, since the 80s. Well, I'm now in my mid 40's so I was not immunized for this illness.
You said your husband's was flu like at onset, mine was sudden. I spiked a very high fever, which was followed by a killer headache. I had a dull headache for three days prior, and the Friday I spiked the fever I felt very lethargic and crabby. Now I can define "Severe" compared to "Mid" as far as headaches go. My sister demanded I go to the ER that Saturday due to my description of my severe headache. I called the ER who referred me to a nurseline. The nurse asked me a handful of questions and then was quite forceful that I be seen ASAP. The ER did nothing being my white cell count was fine at that time. They told me I had a virus, gave me a pain shot and sent me home. Day 2 at the ER resulted in another pain shot and they sent me home with vicodin. The discharge said followup with your primary about your virus and depression. I was offended with that being I am not depressed. I may have appeared depressed being the pain resulted in me crying, whining, and I was irritable especially when they physically tried to get my head/neck to turn. That hurt! Plus, I looked disheveled being I had no energy to bathe or even brush my hair. I honestly don't remember if I told them on either day that the nurseline was worried about meningitis, but they missed it. A friend that took me to the ER on Saturday thinks I did tell them, but that is not clear in my memory.
Once I was told what I had, I googled meningitis and the type I had. All I know is it can be fatal (all forms of bacterial actually), and that it is not common. I have found varying statistics, so I don't know prevalence rates and life course. As you said is your experience and what I am now learning, I don't know if many professionals even know much about it. From my experience, I have found that medical staff are greatly minimizing what I had even while in the hospital. They did quarantine me for 24 hours. I was told either on Tuesday or Wednesday while admitted that I was septic, and that was minimized too. I live in rural Minnesota, so I am considering accepting a referral to a neurologist but I think I'm going to research for one that has experience with meningitis (if possible).
I SO appreciate this website and forum. I feel like I have whined so much to my family and friends about this, and it being a month later I don't want people thinking I'm trying to milk things for sympathy. Now I am learning the residual symptoms are not in my head, well they are but I'm not making it up!
With new perspective, I feel greatly blessed with being alive number one, and my heart goes out to all who experienced FAR WORSE than what I did. I cannot imagine it being worse. I do know that as people we are resilient, and are capable of adapting to what life hands us.
I will now check out your husband's caringbridge page. Thank you so much for sharing. Jo